Alzheimer's research drives novelist:
"The motivations for being a novelist vary. For many, it's the potential fame and possible fortune. For others, it's the love of putting together sentences from the English language. For Woodland author Julie Casper, it's raising money for Alzheimer's research.Casper stayed up late into the night caring for her mother who was suffering from the effects of the Alzheimer's. Feeling powerless while caring for a loved-one with a degenerative disease dejected Casper.'As I started getting into this, I was really frustrated that there was no cure for what my mother had,' Casper said. 'You always feel helpless.'Casper, who holds a doctorate in Earth science, always loved writing. In school she also wrote for the school newspaper. Naturally, her thoughts turned toward prose during the tedious care of her mother. During that time, at 42 years old, she began her first novel.'Writing was almost like an emotional escape from the day to day of having to deal with Alzheimer's and how depressing and frustrating that was,' Casper said. 'Writing allowed me an escape, the same as someone watching a movie. It was kind of respite, therapeutic.... in a way. It was entertainment for me while I could still be close by to her. It kind of eased the stress.'While writing, she also thought of ways to help her mother and others with Alzheimer's. She decided to dedicate the proceeds from her book to Alzheimer's research......"

Talking to Alzheimer's: Simple Ways to Connect When You Visit with a Family Member or Friend

Few books manage to balance practical suggestions and loving sympathy as well as Talking to Alzheimer's, a concise and comprehensive guide to communication with both paid caregivers and their patients. While the title suggests focus on a specific disease, the recommendations are appropriate for any family struggling with serious communication issues, whether those issues are the result of stroke, surgery, disease, or an accident.
Much of the book discusses methods of easing conversation during visits, as well as ways to manage the emotions that can surface in difficult times. From asking open-ended questions like, "How did your day go?" to gently reintroducing yourself to lifelong friends, the pointers here are written with kindness, and they focus on maintaining dignity for all involved. Short sections include tips on involving children in your visits and a welcome list of resources that spans organizations, Web sites, and additional books; this straightforward advice even includes expected response time to Web site inquiries. Instead of an index, you'll find a list of topics, so you can find immediate answers on "ending a conversation" and "when to insist."

One lengthy chapter covers the heartbreakers, such as dealing with refusals to eat or listening to tearful requests to be taken home. Author Claudia Strauss acknowledges the difficulty of these situations honestly, while at the same time providing simple words that can help diffuse the issues and open the path for joyful visits that benefit everyone involved. --Jill Lightner

Learning to Speak Alzheimer's : A Groundbreaking Approach for Everyone Dealing with the Disease (Paperback)

Editorial Review:

An estimated 4 million people are living with Alzheimer’s Disease (AD) in America today, with approximately 370,000 new cases diagnosed every year. AD patients live anywhere from 5 to 20 years after their diagnosis; and their inability to care for themselves grows more dramatic as the disease progresses, creating profound implications for their families and healthcare providers. Its impact on families during the caregiving years is overwhelming.
If you have a family member or close friend who’s suffering from Alzheimer’s Disease and you’re looking for current, useful information, then Alzheimer’s For Dummies is for you. This reference guide also is helpful if you

• Need to know more about its diagnosis and treatment
• Want to take care of yourself while taking care of your loved one
• Are not the primary caregiver but want to know how to help
• Want to know how Alzheimer’s Disease is going to affect you and your loved one
• Alzheimer’s For Dummies takes a realistic look at Alzheimer’s Disease, what it is and what it isn’t. It offers pertinent, easy-to-understand advice for dealing with the myriad concerns and responsibilities that a primary caregiver must assume when managing an Alzheimer’s patient. Here’s a sampling of the information you’ll find in this valuable guide:
• Maneuvering through medical, legal, and financial tangles
• Distinguishing AD from other brain diseases and medical conditions
• Handling the fears that may accompany the diagnosis
• Evaluating current drug therapies; watching out for scams and quack treatments
• Finding the best doctors; dealing with attorneys and CPAs
• Looking at Medicare regulations
• Evaluating the cost of care
• The current state of research, diagnosis, and treatment

Television personality Leeza Gibbons, whose mother was stricken with AD, writes in the foreword of this book, “There is no upside to keeping your head in the sand. This book is a crucial step in your new fight. Arm yourself with the knowledge waiting for you in these pages. It will help you find answers and resources as you adjust to your new reality.”

Alzheimer's for Dummies
by Patricia B. Smith, Mary M. Kenan, Mark Edwin Kunik, Leeza Gibbons

Editorial Reviews
An estimated 4 million people are living with Alzheimer’s Disease (AD) in America today, with approximately 370,000 new cases diagnosed every year. AD patients live anywhere from 5 to 20 years after their diagnosis; and their inability to care for themselves grows more dramatic as the disease progresses, creating profound implications for their families and healthcare providers. Its impact on families during the caregiving years is overwhelming.
If you have a family member or close friend who’s suffering from Alzheimer’s Disease and you’re looking for current, useful information, then Alzheimer’s For Dummies is for you. This reference guide also is helpful if you

• Need to know more about its diagnosis and treatment
• Want to take care of yourself while taking care of your loved one
• Are not the primary caregiver but want to know how to help
• Want to know how Alzheimer’s Disease is going to affect you and your loved one
• Alzheimer’s For Dummies takes a realistic look at Alzheimer’s Disease, what it is and what it isn’t. It offers pertinent, easy-to-understand advice for dealing with the myriad concerns and responsibilities that a primary caregiver must assume when managing an Alzheimer’s patient. Here’s a sampling of the information you’ll find in this valuable guide:
• Maneuvering through medical, legal, and financial tangles
• Distinguishing AD from other brain diseases and medical conditions
• Handling the fears that may accompany the diagnosis
• Evaluating current drug therapies; watching out for scams and quack treatments
• Finding the best doctors; dealing with attorneys and CPAs
• Looking at Medicare regulations
• Evaluating the cost of care
• The current state of research, diagnosis, and treatment

Television personality Leeza Gibbons, whose mother was stricken with AD, writes in the foreword of this book, “There is no upside to keeping your head in the sand. This book is a crucial step in your new fight. Arm yourself with the knowledge waiting for you in these pages. It will help you find answers and resources as you adjust to your new reality.”

The 36-Hour Day : A Family Guide to Caring for Persons With Alzheimer Disease, Related Dementing Illnesses, and Memory Loss in Later Life (Mass Market Paperback)

Review From Library Journal:
It has been estimated that five percent of older people suffer from severe intellectual impairment. So these two eloquent and readable guides will be much in demand as the number of families facing the challenge of caring for a relative with some form of dementing illness continues to grow. First published in 1981, The 36-Hour Day follows the format of the previous two editions but has been thoroughly updated to incorporate new information on the latest research, several drugs that hold promise, and genetic aspects of Alzheimer's. The heart of the guide remains unchanged, focusing on helping families cope with this progressive and irreversible disease. Besides tips on how to care for the demented during the various stages of the disease (for example, place a picture of a toilet on the bathroom door), the text discusses the different kinds of help available and how to seek it. Financial and legal issues are well covered, while sections on nursing homes and other alternative living arrangements provide advice and practical suggestions. Appendixes list recent books, videos, web sites, and U.S. and international organizations. The thrust of GentlecareR is a well-argued plea for a radical change in the way we care for Alzheimer's patients. In outlining her program, Jones states that this rethinking involves people, physical space, and individualized programs. Everyone in the physical plant, from maintenance worker to director, belongs to the care-giving team, as do family members and volunteers. Only when impaired persons can no longer perform for themselves a task like feeding themselves or dressing should it be done for them. Care should concentrate on what can be done, not what cannot. Because her emphasis is on the need for a comprehensive program of care and concentrates more on the institutional setting, Jones does not provide as many practical suggestions or the depth of advice for home care that Mace and Rabins do. Rather, her book describes how facilities can be designed and staffs trained to optimize the quality of life for patients. Both titles are highly recommended: Rabins and Mace for the practical help and advice, Jones for her eloquent presentation of a comprehensive program that treats patients with dignity.AJodith Janes, Cleveland Clinic Fdn.